A NICU Story (part 2)


Breath In, Breath Out.

After finding out that Everly had CHARGE Syndrome I did what any person would do. I googled the crap out of “What is CHARGE Syndrome?” Essentially, it’s having specific medical anomalies. Each letter of CHARGE stands for something and you can be diagnosed either clinically or genetically. In Everly’s case it was genetic and she has letters C,H,A and E. She has a Coloboma in her left eye, she was born with Heart defects, Atresia choanae and Ear abnormalities and she also has the malacia, which would keep her on oxygen until she was 16 months.

The list of diagnosis were daunting and the statistic were scary with a only 70% surviving to five years old and the highest death rates are in the first year of life. I had no idea if she would survive. Burdened now by these statistic I’d keep them to myself…

View original post 434 more words

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s